Advocacy Task Force

The Spina Bifida Coalition has a group of concerned members who work to make a difference locally and nationally with issues related to spina bifida and disability. Soon after SB-Coalition was formed, we worked to advocate for Baby Jane Doe legislation back in the 80’s and more recently impacted housing visitability in Hamilton County. Interested in joining this effort? Email to add your name to the list of spina bifida advocates. This group works individually and in groups on an “as needed” basis and does not have a regular meeting schedule.

Advocacy Efforts of SB-Coalition Representatives:

  • Attend the Association of University Centers on Disabilities (AUCD) conference in Washington, DC, which includes visits to Capitol Hill
  • Serve on the advisory council for the University of Cincinnati University Centers for Excellence in Developmental Disabilities (UCCEDD)
  • Attend the Southwest Ohio Regional Transit Authority (SORTA) meetings to improve bus access for people with disabilities
  • Serve on several advisory councils at Cincinnati Children’s Hospital Medical Center to impact family centered care
  • Participate in Teal on the Hill, a Spina Bifida Association advocacy day in Washington, DC