Our Learn, Lunch & Laugh programs in Cincinnati and Cleveland are quickly approaching. “Let’s Talk About Early Childhood Development” will touch on developmental milestones, developmental delays common in children from birth through age 5 with spina bifida, and developmentally-appropriate activities families can use to encourage development and increase independence. In Cincinnati, Dr. Steph Weber, Psychologist...
Author: Diane Burns (Diane Burns)
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Adaptive Summer Activities in West Virginia
What are your plans for the summer? Here are some adaptive recreation opportunities across the state of West Virginia that might be just the thing to get you/your child active as temperatures warm. The West Virginia University Center for Excellence in Disabilities in partnership with the Christopher Reeves Foundation secured a grant for accessible bikes...
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Learn, Lunch & Laugh – Cincinnati
Registration is now open for our second Learn, Lunch & Laugh program in Cincinnati, “Let’s Talk About Early Childhood Development”. At this session, Dr. Steph Weber, Psychologist and LEND Training Director, will be joined by Dr. Nicoletta Frankenstein, Developmental and Behavioral Pediatrics Fellow, to discuss early child development through age 5. In this presentation, we...
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Summer Camp
With summer just around the corner, we wanted to remind everyone about our camp and recreation scholarships! The Spina Bifida Coalition is pleased to offer financial scholarships for people living with spina bifida within our service area to assist with program registration fees or special equipment to support participation in camp or other adapted recreation...
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Urgent Advocacy Alert
Late yesterday, SBC received notice from the incoming Chief of the Division of Developmental and Behavioral Pediatrics about recent changes in Pediatric Residency education proposed by the Accreditation Council for Graduate Medical Education (ACGME), the body that governs Pediatric Residency programs. This change will affect the care of individuals with developmental disorders (DD) like spina bifida. Stakeholders including...
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2023 SB World Congress
Over 400 people from 100 institutions around the world attended the World Congress on Spina Bifida Research and Care last week in Tucson, AZ. Fifteen topic areas incorporating material from over 100 submitted abstracts were integrated, with break outs for medical specialists including urology, neurosurgery, general pediatrics, orthopedics and neuropsychology as well as current areas...
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Visit to Cleveland
With Rhonda on a health leave of absence, Diane visited Cleveland in her stead on Tuesday and Wednesday, visiting with Spina Bifida Clinic staff at Akron Children’s Hospital and University Hospitals Rainbow Babies, as well as the Fetal Center at Cleveland Clinic. In these meetings, she shared our programs and services and was pleased...
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Swing ‘Fore’ Spina Bifida is March 19
Time is running out to register for our Swing ‘FORE’ Spina Bifida event which is being held on Sunday, March 19th beginning at 11:45 a.m. at Top Golf locations in Cincinnati (West Chester) and Cleveland! Registration is $100 for individuals and $600 for groups of 6. Registration is open for either location until Saturday, March...
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Early Bird Registration Ends Soon!
Do you enjoy friendly competition? Golf (Miniature or Regulation)? Spending time with your friends and family? Supporting the Spina Bifida Coalition? Then join us on Sunday, March 19th at Top Golf – Cincinnati or Top- Golf Cleveland beginning at 12:00 noon. This is a great opportunity to spend some time swinging those clubs and supporting...
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State of Ohio Commendation
At the end of last year, The Spina Bifida Coalition was recognized for its long history of good works by the state of Ohio on the “auspicious occasion” of its 50th Anniversary. Representatives Jean Schmidt and Cindy Abrams sponsored this commendation noting, “The group’s accomplishments and partnerships to assist those living with spina bifida is...