Inclusion in community events and activities is critical to a healthy social life. But it can also be important to connect with people who share common concerns and support you in your spina bifida journey. To this end, The Spina Bifida Coalition plans a variety of programs that bring together people with spina bifida and their families.
Adult Dinner Club, Virtual Hang Outs, and Color, Converse & Craft
Are you an adult, 19 or older, who enjoys food, friendship, and fun? Join us for our bi-monthly meeting of the Adult Dinner Club. Invite a partner, parent, friend, or sibling to join you; all are welcome. We do our best to select affordable and accessible restaurants around Cincinnati. If you have a favorite, contact us and we will try to include it in our rotation around the city. Dinner Club attendees are responsible for the cost of their own meal and beverages.
Virtual Hang Outs are monthly Zoom meetings where friends meet on the third Thursday evening of each month to socialize and share what’s on their minds. Links to join are shared in the SB-Coalition Adult Facebook Group.
Adults who enjoy engaging in artistic activities meet each Tuesday afternoon via Zoom for Color, Converse & Craft to chat virtually while working on their latest project. For some holidays, a craft will be selected for everyone to do, and the supplies will be sent to their home to work on during the designated meeting.
Contact Alexis for more information on any of these adult activities.
Every other month, SBC is planning an activity that brings teens, 13 and up, and adults with spina bifida together to have fun while learning from each other. Parents, caregivers, spouses, significant others and friends are welcome to stay after drop off but will be asked to move to another area to socialize separately from the teens and adults with spina bifida. Questions? Email Diane.
Kids Fly with the Greater Cincinnati Radio Control Club
Each summer, the Greater Cincinnati Radio Control Club hosts a picnic lunch for The Spina Bifida Coalition at their airfield in Trenton, OH. Club members showcase their planes with a spectacular demonstration of their flying skills, followed by the chance for us to act as co-pilot. Don’t be fooled by the name, this event is open to “kids” of all ages.
Learn, Lunch & Laugh
Learn, Lunch & Laugh is a program designed to educate parents and caregivers about a topic related to spina bifida while their children are supervised nearby, enjoying fun activities together. Go to the Events section of the home page to see upcoming Learn, Lunch & Laugh topics and venues.
Plan to spend the holidays with the Spina Bifida Coalition. Each year we plan parties to celebrate the Winter Holidays. The Family Holiday Party takes place in West Virginia, Greater Cincinnati, and Northeast Ohio in early December and is for all members of the family. A casual lunch, holiday desserts, and crafts are enjoyed by all who attend. The party culminates in a visit from jolly old St. Nick who brings gifts and poses for family pictures. Adults in Greater Cincinnati also take their monthly Adult Dinner Club outing to a holiday level, putting on festive clothing and receiving a gift card to help pay for their meal. Check the calendar on the home page for details and to register as the holidays approach.
SB Faceboook Groups
Facebook provides the perfect meeting place for people living with spina bifida and their families to post questions, share resources, and ask for prayers and support, without the hassle of coordinating schedules, hiring baby sitters and finding transportation. The Spina Bifida Coalition hosts and monitors 2 private Facebook groups, open by invitation only. One group is comprised of parents, close family members, and people living with spina bifida and the other is for adults with spina bifida only. To keep the groups safe and personal, these pages are only open to people living in our service area and those who are seen at Cincinnati Children’s and do not have a support agency in their area. Please contact us if you would like to be added to one of these 2 groups.