The Spina Bifida Coalition, Inc. has compiled a list of websites that you may find helpful in learning about spina bifida and its related issues. This page offers links that enable you to leave this site and go directly to the linked site. The links are provided to assist families in locating supports, services, and information related to living with spina bifida.The SB-Coalition is not responsible for the content on or any links contained on these linked sites.  Inclusion on this list of links below does not imply personal experience with or endorsement of the organization or company by the SB-Coalition, its Board of Directors or staff.

Advocacy

• Americans with Disabilities Act
• Disability Information
• Disability Rights Ohio
• Federal Transit Authority
• Inclusion Press
• Patients Rising – Insurance and Medical Care Advocacy
• SBA Legislative Action Center

Education

• ARC of Indiana
• About Special Kids – Indiana
• Indiana Department of Education – Special Education
• Indiana Protection and Advocacy
• Indiana Resource Center for Special Kids (IN*Source)
• Kentucky Department of Education – Special Education
• Kentucky Education Rights
• Non-verbal Learning Disorder on the Web
• US Department of Education Office of Special Education
• US Department of Education Office for Civil Rights
• Ohio Department of Education – Special Education
• “Whose IDEA Is This? A Parent’s Guide to the Individuals with Disabilities Education Improvement Act of 2004” State of Ohio
• Ohio Coalition for the Education of Children with Disabilities
• Parent Mentors in Ohio Schools
• We Connect Now – Helping college students with disabilities to succeed
• Wrightslaw

Employment

• Project SEARCH at Children’s Hospital Medical Center
• Goodwill Industries International, Inc.
• Opportunities for Ohioans with Disabilities
• Healthy and Ready to Work National Resource Center
• The Point ARC of Northern KY

Financial Assistance

• Anna’s Celebration of Life
• Ambucs
• Aubrey Rose Grant
• Building Blocks For Kids
• Child Wellness Fund
• First Hand Foundation
• Paige’s Princesses
• A New Chance Foundation
• United HealthCare Children’s Foundation

Medical

• Fecal Incontinence
• The Hydrocephalus Association
• MOMS Management of Myelomeningocele Study
  YouTube video, “Management of Myelomeningocele Study”
• My Health Passport – editable pdf
• Spina Bifida Clinic at Children’s Hospital Medical Center
• What is Chiari Malformation

Nutrition

• Choose My Plate
• Cincinnati Nutrition Council
• USDA Dietary Guidelines

Online Discussion Groups

• Special Connections Community – hosted by Cincinnati Children’s Hospital Medical Center
• Spina Bifida Mom Blog – privately hosted by a mom with Spina Bifida
• SB Parents Listserv – hosted by the Spina Bifida Association

Orthotics

• Examples of Lower Limb Orthotics

Recreation

• Butler County Challenger Baseball
• CCHMC Healthworks
• Camp Echoing Hills
• Camp Emmanuel
• Camp Joy
• Camp Rancho Framasa
• Cincinnati Icebreakers Sled Hockey
• Cincinnati Recreation Commission – Therapeutic Recreation
• Cincinnati Therapeutic Riding and Horsemanship
• Cincinnati Top Soccer
• Courageous Kids Camp
• Fishing Has No Boundaries – Ohio Chapter
• Hamilton County Special Olympics
• Joni and Friends – Ohio
• Kamp Dovetail
• Midwest Cheer Elite
• Miracle League Baseball
• New Perceptions Summer Pre-School Therapy
• National Center on Physical Activity and Disability
• Perfect North Slopes – adaptive snowsports and lessons
• Recreation Unlimited Camp
• Redwood Summer Camp for Children
• Revere Dance Studio – Wheelchair Dance
• Row America – Hamilton
• Sparklers Cheer Team
• Stepping Stones Center
• TAASC: The Adaptive Adventure Sports Coalition
• TAASC Facebook Page

Regional Resources

• Cincinnati Children’s Hospital Medical Center Special Needs Resource Directory
• Circle Tail Assistance Dog Program
• Hamilton County Developmental Disabilities Services
• Jack Rubinstein Libraries at Cincinnati Children’s Hospital Medical Center
• MobilityWorks – Adapted vehicles
• Ohio Department of Health Help Me Grow Program

Residential

• CILO – Center for Indpendent Living Options
• Family Self Sufficiency Program (City of Cincinnati)
• Go Section 8 Housing Search
• Ohio Rental Housing Locator
• People Working Cooperatively – Home Repairs
• SOAR (Services for the Ownership and Acquisition of Residences) through Living Arrangements for the Developmentally Disabled
• Steve Gold’s Information on Housing

Respite

• Recreation Unlimited
• Stepping Stones Center
• Vineyard Community Church Respite Evenings

Social Security Disability Insurance FAQ’s

• Social Security Disability Information

Spina Bifida

• Center for Parent Information and Resources
• “Right Under My Nose: A Book for Children with Spina Bifida”
• Spina Bifida Association of America
• Spina Bifida Fact Sheet – National Institutes of Health
• SBTween2Teen

Miscellaneous

• We Connect Now, a Website for Students with Disabilities
• The Center for Universal Design
• Late, Lost and Unprepared: A Parents’ Guide to Helping Children with Executive Functioning
• Managing My Money: Banking and Budgeting Basics
• Software for Individuals with Disabilities
• Birth Defects
• A Developmental Timeline for Growing Up

West Virginia Resources

• Center for Excellence in Developmental Disabilities
• Children with Disabilities Community Services Program (CDCSP)
  CDCSP Application Form
• Disability Rights of West Virginia
• Dept. of Education – Hand in Hand Guidance for West Virginia Families
• Intellectual/Developmental Disability Waiver
• Office of Maternal, Child and Family Health, WV Birth to Three
• Parents Guide to Special Education
• The ARC of West Virginia
• West Virginia Bureau for Medical Services – Medicaid Waiver Programs
• West Virginia Developmental Disabilities  Council  – Comprehensive Resource List