Spina Bifida Web Links

The Spina Bifida Coalition, Inc. has compiled a list of websites that you may find helpful in learning about spina bifida and its related issues. This page offers links that enable you to leave this site and go directly to the linked site. The links are provided to assist families in locating supports, services, and information related to living with spina bifida.The SB-Coalition is not responsible for the content on or any links contained on these linked sites.  Inclusion on this list of links below does not imply personal experience with or endorsement of the organization or company by the SB-Coalition, its Board of Directors or staff.


Americans with Disabilities Act

Disability Information

Disability Rights Ohio

Federal Transit Authority

Inclusion Press

Patients Rising – Insurance and Medical Care Advocacy

SBA Legislative Action Center


ARC of Indiana

About Special Kids – Indiana

Indiana Department of Education – Special Education

Indiana Protection and Advocacy

Indiana Resource Center for Special Kids (IN*Source)

Kentucky Department of Education – Special Education

Kentucky Education Rights

Non-verbal Learning Disorder on the Web

US Department of Education Office of Special Education

US Department of Education Office for Civil Rights

Ohio Department of Education – Special Education

“Whose IDEA Is This? A Parent’s Guide to the Individuals with Disabilities Education Improvement Act of 2004” State of Ohio

Ohio Coalition for the Education of Children with Disabilities

Parent Mentors in Ohio Schools

We Connect Now – Helping college students with disabilities to succeed



Project SEARCH at Children’s Hospital Medical Center

Goodwill Industries International, Inc.

Opportunities for Ohioans with Disabilities

Healthy and Ready to Work National Resource Center

The Point ARC of Northern KY

Financial Assistance

Anna’s Celebration of Life


Aubrey Rose Grant

Building Blocks For Kids

Child Wellness Fund

First Hand Foundation

Paige’s Princesses

A New Chance Foundation

United HealthCare Children’s Foundation


Fecal Incontinence

The Hydrocephalus Association

MOMS Management of Myelomeningocele Study
YouTube video, “Management of Myelomeningocele Study

My Health Passport – editable pdf

Spina Bifida Clinic at Children’s Hospital Medical Center

What is Chiari Malformation


Choose My Plate

Cincinnati Nutrition Council

USDA Dietary Guidelines

Online Discussion Groups

Special Connections Community – hosted by Cincinnati Children’s Hospital Medical Center

Spina Bifida Mom Blog – privately hosted by a mom with Spina Bifida

SB Parents Listserv – hosted by the Spina Bifida Association


Examples of Lower Limb Orthotics


Butler County Challenger Baseball

CCHMC Healthworks

Camp Echoing Hills

Camp Emmanuel

Camp Joy

Camp Rancho Framasa

Cincinnati Icebreakers Sled Hockey

Cincinnati Recreation Commission – Therapeutic Recreation

Cincinnati Therapeutic Riding and Horsemanship

Cincinnati Top Soccer

Courageous Kids Camp

Fishing Has No Boundaries – Ohio Chapter

Hamilton County Special Olympics

Joni and Friends – Ohio

Kamp Dovetail

Midwest Cheer Elite

Miracle League Baseball

New Perceptions Summer Pre-School Therapy

National Center on Physical Activity and Disability

Perfect North Slopes – adaptive snowsports and lessons

Recreation Unlimited Camp

Redwood Summer Camp for Children

Revere Dance Studio – Wheelchair Dance

Row America – Hamilton

Sparklers Cheer Team

Stepping Stones Center

TAASC: The Adaptive Adventure Sports Coalition

TAASC Facebook Page

Regional Resources

Cincinnati Children’s Hospital Medical Center Special Needs Resource Directory

Circle Tail Assistance Dog Program

Hamilton County Developmental Disabilities Services

Jack Rubinstein Libraries at Cincinnati Children’s Hospital Medical Center

MobilityWorks – Adapted vehicles

Ohio Department of Health Help Me Grow Program


CILO – Center for Indpendent Living Options

Family Self Sufficiency Program (City of Cincinnati)

Go Section 8 Housing Search

Ohio Rental Housing Locator

People Working Cooperatively – Home Repairs

SOAR (Services for the Ownership and Acquisition of Residences) through Living Arrangements for the Developmentally Disabled

Steve Gold’s Information on Housing


Parent Group Collaborative Respite List – Greater Cincinnati

Recreation Unlimited

Stepping Stones Center

Vineyard Community Church Respite Evenings

Social Security Disability Insurance FAQ’s

Social Security Disability Information

Spina Bifida

Center for Parent Information and Resources

“Right Under My Nose: A Book for Children with Spina Bifida”

Spina Bifida Association of America

Spina Bifida Fact Sheet – National Institutes of Health



We Connect Now, a Website for Students with Disabilities

The Center for Universal Design

Late, Lost and Unprepared: A Parents’ Guide to Helping Children with Executive Functioning

Managing My Money: Banking and Budgeting Basics

Software for Individuals with Disabilities

Birth Defects

A Developmental Timeline for Growing Up

West Virginia Resources

Center for Excellence in Developmental Disabilities

Children with Disabilities Community Services Program (CDCSP)
CDCSP Application Form

Disability Rights of West Virginia

Dept. of Education – Hand in Hand Guidance for West Virginia Families

Intellectual/Developmental Disability Waiver

Office of Maternal, Child and Family Health, WV Birth to Three

Parents Guide to Special Education

The ARC of West Virginia

West Virginia Bureau for Medical Services – Medicaid Waiver Programs

West Virginia Developmental Disabilities  Council  – Comprehensive Resource List