Touchpoints – resources for developmental milestones
Touchpoints
Touchpoints is a list of resources targeting new issues faced at developmental milestones. We hope you will visit this page often as you/your child progress through your journey with spina bifida. This page offers website links that enable you to leave this site and go directly to the linked site. The links are provided to assist families in locating supports, services, and information related to living with spina bifida. The Spina Bifida Coalition, Inc. is not responsible for the content on or any links contained on these linked sites. Inclusion of these resources on this list does not imply personal experience with or endorsement of the organization or company by the The Spina Bifida Coalition, Inc., its Board of Directors or staff.
All Age Groups
Indiana INvestABLE Accounts
Kentucky STABLE Accounts
Ohio STABLE Accounts
West Virginia Able Accounts
- Center for Disease Control Spina Bifida Information Page
- Center for Spina Bifida at CCHMC Clinic Contact List
- Cincinnati Children’s Hospital Medical Center Family Resource Center
- Cincinnati Children’s Hospital Medical Center Jack Rubinstein Library
- Cincinnati Children’s Hospital Medical Center Special Needs Resource Directory
- Division of Developmental and Behavioral Pediatrics at CCHMC – Educational Sessions
- Guidelines for the Care of People with Spina Bifida- SBA
- Guidelines for People with Spina Bifida by Age – SBA
- Know Your Rights – ACLU
- Living with Spina Bifida Bowel and Bladder Management – Coloplast
- Qualifying for Developmental Disabilities Services – Hamilton County
- Shunt Complications and Risks – Hydrocephalus Association
- Smart911 – Safety Profile
- Latex List – SBA
- Ohio Center for Autism and Low Incidence (OCALI)
- University of Cincinnati Center for Excellence in Developmental Disabilities
Newborn
- Developmental Disabilities Services Early Intervention – Hamilton County
- Developmental Milestones Tracker – CDC Learn the Signs, Act Early
- Indiana First Steps – Early Intervention
- Kentucky First Steps – Early Intervention
- Living with Spina Bifida – Infants – CDC
- Ohio Early Intervention
- ZeroToThree
Pre-School
- Cincinnati PARENT Magazine – Special Needs Directory
- Living with Spina Bifida – Toddlers and Preschoolers – CDC
- Right Under My Nose – a book and activities for children with spina bifida
School Age
- A Guide for School Personnel – Kennedy Krieger Institute
- Advocating for Yourself – Wrightslaw
- ADDitude – Could My Child Have ADHD?
- Beyond Crayons – Information Packet for School
- Bullying – stopbullying.gov
- Educational Issues Among Children with Spina Bifida – SBA
- Living with Spina Bifida – School-Aged – CDC
- Millie Goes to Camp – Hollister
- Millie’s Swimming Success – Hollister
- Zones of Regulation – Emotional Control Training
Adolescents and Teens
- Before Age 18 Checklist
- Employment Support and Training – Opportunities for Ohioans with Disabilities (OOD)
- Family Resource Network of Ohio – Charting the LifeCourse
- Got Transition
- KentuckyWorks
- Living with Spina Bifida – Adolescents and Teens – CDC
- Ohio Employment First Transition Guide
- Pacer’s National Parent Center on Transition
- Physical Fitness – NCHPAD
- US Department of Education Transition Guide
Adults
- Community Safety 10 Module Training – Ohio Employment First
- Depression and Anxiety – SBA
- GetSSAHelp.com – emailed questions are answered free of charge
- Health Care for Women – SBA
- Living with Spina Bifida – Adults – CDC
- Obesity – SBA
- Social Security Administration