Research News

Research News

We are excited to announce that SBCC and The Center for Spina Bifida (SB Clinic) have been awarded two grants to further our research focusing on transition to adulthood that we began in 2018.

The Jack Rubinstein Foundation for Developmental Disabilities awarded our partnership a grant in the amount of $50,000; we were also awarded a Community Health Grant from The Center for Clinical & Translational Science & Training in the amount of $20,000. These two grants will allow us to build on the results of our previous research project “Adolescents and Young Adults with Spina Bifida Transitioning to Adulthood: A Comprehensive Community-Based Needs Assessment”. A manuscript documenting this study has been accepted for publication in the Journal of Academic Pediatrics. Highlights can be found here and the full article by clicking here.

The long term goal of this research partnership is to develop evidence-based interventions that improve the health outcomes, quality of life, and community participation of adolescent and young adults (AYA) with spina bifida as they transition to adult healthcare and adulthood. Both organizations will be strengthened by the information learned from this study.

In upcoming months we will share information on how you can participate in focus groups and interviews to contribute to the development of future programming.

Members of the research team include Jason, Woodward, M.D., Rhonda Horick, MSW, Diane Burns, Brittany Spicer, and Melissa Liddle, PsyD Fellow.