SBCC and The Spina Bifida Clinic at Children’s Hospital (SBC) have been awarded a $5,000 Partnership Development Grant by the Center for Clinical & Translational Science & Training (CCTST). The grant will utilize concept-mapping to address and identify barriers to and facilitators of the transition of individuals with spina bifida in regards to health care.
Transitioning from pediatric care to adult–oriented care is often a challenge. Together SBCC and SBC will interview individuals with spina bifida, parents, caregivers, pediatric and adult healthcare providers as well as local advocacy and service providers to explore interventions that support self-management development in regards to transition. Currently, there is little information or research regarding strategies for improving the outcomes of those affected by spina bifida as they transition to adulthood.
We will be seeking volunteers to participate in this exciting research opportunity, so stayed tuned for updates.