THANK YOU, MAGGIE!
Last week, Maggie Neumann from Maggie’s Marvelous Mini Cheesecakes invited Rhonda and Diane over to present us with the proceeds from her charitable giving initiative. Maggie donates 20% of the proceeds from the sale of her delicious mini cheesecakes, as well as any tips she receives, to non-profits in Greater Cincinnati. The Spina Bifida Coalition, Inc. was delighted to be designated as the charity of choice for the months of October, November, and December of 2022 – obviously high-volume production time for Maggie and her crew. SBC certainly benefitted from her hard work. Maggie presented SBC with a donation for over $4,000, her largest donation to date!! If you haven’t tried her cheesecakes yet, she has two amazing seasonal flavors added to her regular selections, brownie bottom chocolate chip cookie dough and maple pecan. She is also offering special Bengals cheesecakes to celebrate the team’s success in the playoffs.
With growth comes the need for additional part-time staff, a Program Assistant, and an Administrative Assistant.
Program Assistant Position
The Program Assistant will have a passion for helping others with a comprehensive understanding of child-onset chronic health conditions and/or developmental disabilities. This position will support the Program Manager to develop and implement programs related to the organization’s pillars (advocacy, connection, education, and support) to empower those living with spina bifida to achieve their maximum potential in eastern, northeastern, and southern Ohio, northern Kentucky, southeastern Indiana, and West Virginia. This position is hourly and although flexible will include weekend and evening commitments.
Candidates must demonstrate excellent interpersonal, oral, and written communication skills, be self-directed, flexible, team player, compassionate, understand the importance of confidentiality and exhibit strong problem-solving skills. In addition, a High School diploma and either an Associate’s degree or relevant vocational experience in human or customer service field is required.
The candidate must have access to high-speed internet to participate in online meetings; and a computer and printer to work independently from home. Fluency with Zoom software for meetings is necessary.
For more information regarding this position or to submit a resume for consideration, please email Diane Burns, Program Manager by February 1, 2023.
Administrative Assistant Position
The Administrative Assistant will have a passion for helping others with a comprehensive understanding of child-onset chronic health conditions and/or developmental disabilities. This position will support the Executive Director in the daily activities of the organization while supporting the mission of the organization which is to empower those living with spina bifida to achieve their maximum potential in eastern, northeastern, and southern Ohio, northern Kentucky, southeastern Indiana, and West Virginia. This position is hourly, and the individual will work remotely.
Candidates must demonstrate excellent interpersonal, oral, and written communication skills, be self-directed, flexible, team player, compassionate, understand the importance of confidentiality and exhibit strong problem-solving skills. Candidates should possess strong computer skills and confidence using Microsoft programs including Word, Excel, as well as a basic understanding of accounting software (QuickBooks) and knowledge of/or a desire to learn Salsa (Constituent Related Database). The candidate must have access to high-speed internet to participate in online meetings; and a computer and printer to work independently from home. Fluency with Zoom software for meetings is necessary.
For more information regarding this position or to submit a resume for consideration, please email Rhonda Horick, Executive Director by February 1, 2023.
LET’S TALK ABOUT IEPs
Learn, Lunch & Laugh is a new program designed to educate parents and caregivers about a topic related to spina bifida while their children are supervised nearby, enjoying fun activities together. Our first Learn, Lunch & Laugh in Greater Cincinnati takes us to the Newport Aquarium in Northern Kentucky on Sunday, March 5th at 1:00 PM. At this session, Terri Doerr, Special Needs Parent Mentor at Lakota Local Schools will be joined by Becky Kremer, Special Needs Parent Mentor at Hamilton City Schools, to discuss how to maximize your child’s education and inclusion in the classroom. Their discussion will be generalized to include both grade school and high school students at any public school.
The program begins with a lunch of pizza and lemonade in the Reef Room at the Newport Aquarium. After lunch, children will explore the rest of the aquarium with volunteers from the UC School of Social Work and the UC University Center of Excellence in Developmental Disabilities LEND Program while parents remain in the Reef Room for the presentation. Our goal is to provide one volunteer to accompany each child with spina bifida in the aquarium. Registered siblings will be attended by the same volunteer, unless otherwise requested. Please contact Diane if you have questions or concerns regarding the volunteers.
Don’t wait to register. This presentation is limited to 30 participants (including the children) due to the size of the Reef Room at the Aquarium. In order to include as many families as possible, registration for the program is limited to 3 people per family. Register and learn more about the program at https://spinabifidacoalition.salsalabs.org/LearnLunchLaughLetsTalkAboutIEPs
SWING ‘FORE’ SPINA BIFIDA IS BACK X 2!
We are excited to announce that Swing “Fore” Spina Bifida is back x 2! We will be hosting two simultaneous events on Sunday, March 19th, beginning at 12:00 noon until 4:00 p.m.
Join us at Top Golf 9568 Water Front Drive West Chester Township, Ohio 45069 or Top Golf 5820 Rockside Woods Blvd. North, Independence, Ohio 44131 for a fun-filled afternoon of Top Golf with your family and friends and a friendly intra-organization competition in support of SBC! You don’t have to be a golfer to play – clubs and fun are included!
Early Bird Registration will open tomorrow, January 18th at 8:00 a.m.! Register by Monday, February 27th to take advantage of the Early Bird Registration Special…Individuals pay only $90 and groups of 6 are just $540! Registration fees will rise to $100 for individuals and $600 for groups of 6 on February 28th; registration deadline is Saturday, March 11th. Should we reach our maximum, a waitlist will be created, and you will be notified by March 12th!
• 2-Tournament games plus an additional hour of Top Golf.
• Fajita Fiesta Buffet (Steak & Chicken Fajitas with peppers + rice+ black beans + tortillas (gluten free also) chips & salsa, shredded cheese, pico de gallo, sour cream, and chocolate chip cookie bites.) Non-alcoholic beverages included. A Cash Bar will be available.
• Opportunity to compete in a friendly intra-organizational competition.
• Chance to be named “SBC Individual Top Golf Champion” or a member f the “SBC Top Golf Group Champion.”
In addition, you have the opportunity to compete in a “Closest to the Pin” contest @ $5/shot or 6/$25 (winner will receive 50% of the proceeds) and Split the Pot tickets $5/each or 6/$25 available during registration or at the event.
This is a fun way to take a few swings with family and friends while supporting SBC and improving that swing after the long winter hiatus.
Questions? Contact Rhonda