We had a great turn out for our first SBsync event at Pin Deck Bowling in February. We heard that everyone had a great time, so let’s keep the energy going! On April 1st, teens and adults with spina bifida will be joining The Bridge Adaptive Sports & Recreation Program at their Adaptive Curling Try-It event at the beautiful Indian Hill Winter Club. Curling is a Paralympic sport that allows players to use their personal assistive mobility devices while on the ice. There will be (2) hour-long sessions, the first starting at 3:15pm and the second at 4:15pm. Let’s register ...
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Serving YOU our constituents is our priority; however, we are asking for your patience for the next two weeks. Rhonda Horick will be undergoing open heart surgery on March 14th and will be out of the office for a couple of weeks.  Diane Burns will be traveling to Northeastern Ohio to meet with representatives from our partner hospitals on March 14-15 and heading to Tucson, AZ to present our research project along with Jason Woodward MD at SBA World Congress March 22-25th. All services will continue to be available during this time we just ask that you allow us additional ...
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We are excited to offer our first Learn, Lunch & Laugh program in Cleveland at Youth Challenge Westlake on Sunday April 30, 2023 from 12:30 - 2:30 pm. At this session, Lisa Lutz, Information Specialist /Trainer for the Ohio Coalition for the Education of Children with Disabilities will discuss how to maximize your child's education and inclusion in the classroom. The presentation will share examples of successful IEP goals, and review the IEP process and your rights as a parent. It will be general in nature to provide information to parents of grade school and high school students and will ...
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The national Spina Bifida Association hosted their annual Teal on the Hill advocacy day on Tuesday, February 28th to ask for increased support of the Spina Bifida Program at the Center for Disease Control that collects data of 11,000 patients with spina bifida at 22 clinics across the country, as well as the Stop the Wait Act sponsored by Bob Casey of Pennsylvania to drop the wait of SSDI and Medicare benefits once a person is approved for disability services. Four Ohioans participated, including John Munnis, Jr., Diane Burns, Alexis Allen, and Isabella Burton, a self-advocate who attended for the ...
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Time is running out to register for our Swing ‘FORE’ Spina Bifida event which is being held on Sunday, March 19th beginning at 11:45 a.m. at Top Golf locations in Cincinnati (West Chester) and Cleveland! Registration is $100 for individuals and $600 for groups of 6.  Registration is open for either location until Saturday, March 11th!  Registration for the Cincinnati (West Chester) event may be found here. Registration for the Cleveland event may be found here. Registration includes: 2-Tournament games plus an additional hour of Top Golf. Fajita Fiesta Buffet - Non-alcoholic beverages included.  A Cash Bar will also be available ...
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